The Work Forum on the implementation of the United Nations Convention on the Rights of Persons with Disabilities met in Brussels on 29 April 2015. The Forum brought together representatives of those responsible for implementing and monitoring the implementation of the UN Disability Convention, both at European and national level; these are focal points, coordination mechanisms and monitoring mechanisms. Civil society and disabled people’s organizations also actively participate in the Work Forum. The Work Forum aimed at ensuring that the disability treaty is fully implemented. It allowed to share experiences on its practical implementation and monitoring and to promote solutions to common challenges. It is organized by the European Commission and meets every year since 2010.  The implementation of the UN Convention is a shared task: both the European Commission and the vast majority of its Member States are parties to the disability rights treaty and they implement it within their respective competences. Within the frame of the Forum, a roundtable was organized with the theme: “Improving synergies between the EU and the national level in the implementation of the UN Convention”. Discussants included  the author, Lucian Agafitei from Eurostat and  Roberta Crialesi from the National Statistical Authority of Italy (Istat). The following text summarizes the author’s remarks and contributions to this discussion, highlights challenges in data collection on disability and advocates for a more active role of civil society in policy surveillance and monitoring.

Sue Bertschy

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Objective: To describe a cohort of women with a physical disability in various reproductive life stages to support the development of specific management targets, especially during the fertile stage. Design: Community survey. Population / Sample: We analysed data from 440 female participants with chronic spinal cord injury (SCI) aged over 16 years from the cross-sectional community survey of the Swiss Spinal Cord Injury Cohort Study (SwiSCI) in 2017. Methods: The full cohort was analysed using descriptive analysis. For women in the fertile reproductive life stage, a regression technique was used to identify the predictors of becoming a mother after SCI. Results: More than 50% of the sample were aged over 56, and approximately one fourth were in the fertile (16-45 years) age group. Motherhood after SCI was most prevalent in women with low and incomplete lesions and those who sustained an SCI at a young age. The chances of giving birth significantly decreased when sustaining an SCI after the age of 35. The mean age at first delivery after SCI (age 31.2±5 years) was five years higher compared to women with an SCI who gave birth before sustaining SCI (age 26.2±5 years). Conclusions: The study provides evidence for the need for tailored and specific lifespan adjusted obstetric and gynaecological services for women with SCI and for women with a disability in general. Funding: This study has been financed through the framework of the Swiss Spinal Cord Injury Cohort Study supported by the Swiss Paraplegic Foundation.