“I stopped working so I could be here so they wouldn’t be at day care and wouldn’t get exposed to so many germs. ……. you know I gave up my career so that I could better take care of the kids……. I don’t work anymore. So this is the worst thing for me, if we are talking about me as a mother. I always thought that I would have a career and a family too, close together and right now I can only I don’t have any career right now and I studied a lot and when I meet my old friends, you know from university or from school, they are like, oh my god, I don’t believe you don’t work! This is what everybody expected or I was expecting from myself.” (mother 8)
The child’s genetic diagnosis prompted the parents to reflect on family goals and some parents discussed their decision not to have any more children.