“I’m actually qualified now, so I trained to do home IVs, so I can actually administer once they have a PICC line fitted and the consultant decides they’re ok to be in my care at home. I actually bring them home and I do the IV myself because again it’s given us the ability to back together as a family and I think that’s the biggest care – sometimes not being able to be together as a family. “ (mother 3)
Some parents tried to forget their worries and supressed negative emotions that surfaced due to the challenges of raising a child with PCD, for example by crying, exercising, keeping busy, thinking positive thoughts, having fun and laughing a lot. Some found themselves taking prescribed mental health medication, whereas other parents positively re-assessed the situation so it no longer induced negative emotional responses through techniques such as praying, not thinking about PCD, wishing for the miracle of a cure, or knowing that today is a bad day but hoping that tomorrow might be a good day. The most popular form of adaptive cognitive coping was the parent comparing their situation with somebody who was worse off. As this father described: