Social Functioning and Role
- Do you believe you have changed now that you are caring for a child
with a chronic illness?
- How has having a child with PCD impacted on your relationships with
others?(Prompt: address family, friends, spouse, children and
colleagues)
- Has having a child with PCD lead to new relationships in your life?
- How has having a child with PCD impacted on your personal, family or
career goals?(Prompt: does your child’s chronic illness create any financial
concerns in the family (e.g. travel costs to hospital; care
arrangements siblings; cost special food or things; trouble
maintaining employment?)
- Do you feel like extended family members and the community understand
what PCD is and what you as a family are going through?
- Do you feel like your child’s PCD has an impact on your child in terms
of his or her development?(Prompt: Address physical, emotional and social functioning.
Under social functioning address relationships with family members
i.e. siblings, and those outside of the home)