Parent’s reaction to : Parent’s reaction to : Parent’s reaction to : Parental: Parental:
Major Themes: PCD diagnosis child Treatment regiment child Health status child Coping Concerns for future
Sub-Themes:
Prenatal experiences
Daily treatment: Management Parent-child interaction Emotional impact on parents
Emotional
Support seeking
Explaining PCD
Feelings before Medical procedures and medication Health Problem-focused Social/emotional impact PCD
Feelings after Outpatient appointments Behavioural Emotional-focused Progression PCD
Hospitalization Vocational Cognitive adaptive Impact PCD on development, social activities, career goals
Family goals Impact PCD on fertility
Social Ability child to manage PCD