“I currently have in my team at work somebody who’s having a baby who’s got a tumour on her brain and it’s about viability of the baby, so when you think about what could be happening and that fact that my son has wonderful life and is very happy and he actually talks fine and he’s you know got a zest for life, he’s enthusiastic and he’s running around actually compared to perhaps what other people are going through, this really isn’t as big a deal as it could have been.” (father 2)
Parental concerns for the future
Parents who were thinking about the future mentioned their anticipation of explaining PCD to their child when they are old enough to understand.