Introduction
Thank you very much for agreeing to participate in this study.
As mentioned in the Participant Information Sheet, this interview is to help us to understand how your child’s PCD effects them, and you. This information will be used for the development of a questionnaire which can be used in clinics or research to monitor how PCD is effecting your quality of life. The interview is being recorded but the recording will be kept confidential, we won’t feed anything back to your medical team or anyone else, and you won’t be identified in any reports or presentations. Before we go further please can you let me know if you have any questions about the research?
Once any questions are answered, You have previously signed a consent form for this study, please can you confirm that you are still happy to participate, and that you are happy to be recorded?
The interview will take roughly an hour so I would like to confirm with you that we do have sufficient time for this. Obviously if you would like to stop at any time please let me know and we can stop, or arrange a convenient time to resume the interview, whichever you prefer.
Do you have any (further) questions for me before we start?