Introduction
Thank you very much for agreeing to participate in this study.
As mentioned in the Participant Information Sheet, this interview is to
help us to understand how your child’s PCD effects them, and you. This
information will be used for the development of a questionnaire which
can be used in clinics or research to monitor how PCD is effecting your
quality of life. The interview is being recorded but the recording will
be kept confidential, we won’t feed anything back to your medical team
or anyone else, and you won’t be identified in any reports or
presentations. Before we go further please can you let me know if you
have any questions about the research?
Once any questions are answered, You have previously signed a
consent form for this study, please can you confirm that you are still
happy to participate, and that you are happy to be recorded?
The interview will take roughly an hour so I would like to confirm with
you that we do have sufficient time for this. Obviously if you would
like to stop at any time please let me know and we can stop, or arrange
a convenient time to resume the interview, whichever you prefer.
Do you have any (further) questions for me before we start?