2.5. Step 3: Pilot Study
A pilot study was conducted with a 16-year-old male and a 21-year-old
female patient randomly selected by TC team members. During the pilot
study, BOTH patients were asked to complete 11 core KAQs and 2
responsibility checklists. Both patients confirmed that the materials
were understandable and informative. They expressed their excitement
about the implementation of such a program. The pilot visits lasted 30
and 40 minutes respectively. Feedback from the CF team revealed that
patients would need an extra 30-40 minutes of in addition to their
routine clinical procedures. After the pilot study, the program was
introduced to all families and patients through an online meeting.