1. FAMILY
Families of SCD individuals confront a variety of difficulties, from
psychosocial issues to economic difficulties. The preliminary support
pillar of SCD patients is their family. They provide physical, emotional
as well as economic support to the patients. Proximities of family
member and friends give SCD patients the feeling of security and
confidence. Spending time with family enhances the benefit of treatment
and motivates the patient for healthy habits. Family can help create a
positive environment for recovery. Along with family support to the
patients of SCD, family resilience is important firstly for examining
family dynamics, enduring a crisis, making the most of opportunities for
growth, and learning how to help others in similar circumstances. Family
resilience is viewed as a process that develops over time as opposed to
a quality. It opens a channel for identifying and developing crucial
family strengths and resources that can lessen stress and susceptibility
in high-risk situations, promote healing and growth after crises, and
help families get through protracted
adversity.14
There is need of education in terms of (i) knowledge of the child’s
health condition, (ii) common symptoms and care, and (iii) psycho-social
problems and coping mechanism. Parents, especially mothers,
have practical and psychological challenges when raising a child with
SCD.13
Health education can impart mothers the knowledge and skills they need
to reduce or eliminate the conditions that might lead to SCC, including
as keeping the child warm, maintaining hydration, making the environment
jovial, and engaging in lesser physical activity. This approach enables
mothers to keep their independence while asserting control over the
welfare of their children.15
In tribal context, the women play a significant role in the management
of their natural, social, and economic resources. However, they continue
to be behind because of traditional values. When compared to men, women
have a higher social status and economic worth in tribal societies and
women are considered more essential than their male counterparts in the
upbringing of children, as men are typically involved in social and
economic activities rather than caring for their families. In the tribal
setting, women must be imparted health education since they play a vital
role in the household. Most importantly, this health education must be
provided in their own tongue so that they can comprehend SCD. Previous
study has found that SCD patients experience a great sense of acceptance
among the community from their families, friends, and the
school support17 .