Results
The video was well received by both parents and patients. It was thought
to be ”educational for all ages” and “brought piece of mind”.
Participants commented on the video’s simplicity and tone. ”I’m very
sure my son would have enjoyed it. Maybe he felt it was going to be
maybe traumatic… But there’s nothing like that about the video.”
Important themes that emerged from the analysis included: ‘Age
Appropriateness’, ‘Empowerment’, ‘Knowledge Gaps’, ‘Linguistic
Accessibility’, ‘Medication Adherence’, ‘Strength in Community’ and
‘Transition to Adult Care’.