Results
The video was well received by both parents and patients. It was thought to be ”educational for all ages” and “brought piece of mind”. Participants commented on the video’s simplicity and tone. ”I’m very sure my son would have enjoyed it. Maybe he felt it was going to be maybe traumatic… But there’s nothing like that about the video.”
Important themes that emerged from the analysis included: ‘Age Appropriateness’, ‘Empowerment’, ‘Knowledge Gaps’, ‘Linguistic Accessibility’, ‘Medication Adherence’, ‘Strength in Community’ and ‘Transition to Adult Care’.