Intake and Pre-test Genetic Counseling
Before a participant’s pre-test genetic counseling appointment, the GC
reviews intake survey data as well as completion status and responses to
the DA. The GC takes note of relevant information related to medical
history and initial SF preferences. Participants are provided a secure
login for the DA, as well as a link to register for the group webinar,
before their pre-test counseling appointment. Before starting the
webinar, the GC provides an overview of the session and describes
measures taken to ensure participant confidentiality. Next, the GC
outlines general information on genes and hereditary conditions,
potential SF and other research-related information that may be included
in the final report, implications and limitations of GS, as well as
possibilities for follow-up. The webinar concludes with an anonymous
question and answer session. Upon completion of the webinar, the GC
follows up briefly with each attendee by phone to answer any additional
questions as well as confirm preferences for SF and return of results.
Preferences and a record of completion of pre-test counseling are
recorded in the participant’s study file.