Intake and Pre-test Genetic Counseling
Before a participant’s pre-test genetic counseling appointment, the GC reviews intake survey data as well as completion status and responses to the DA. The GC takes note of relevant information related to medical history and initial SF preferences. Participants are provided a secure login for the DA, as well as a link to register for the group webinar, before their pre-test counseling appointment. Before starting the webinar, the GC provides an overview of the session and describes measures taken to ensure participant confidentiality. Next, the GC outlines general information on genes and hereditary conditions, potential SF and other research-related information that may be included in the final report, implications and limitations of GS, as well as possibilities for follow-up. The webinar concludes with an anonymous question and answer session. Upon completion of the webinar, the GC follows up briefly with each attendee by phone to answer any additional questions as well as confirm preferences for SF and return of results. Preferences and a record of completion of pre-test counseling are recorded in the participant’s study file.