Dependent Variable
The PedsQL 3.0 SCD module, a disease-specific measurement tool, was specifically selected for this research study to examine the HRQOL of the participants. There are two separate questionnaires used – one for our child participants between 8 - 12 years old and one for our teen participants 13 -17 years old. Both questionnaires contain nine different dimensions, 43 items total, with each dimension assessing the patient’s pain, worry, emotions, treatment, or communication. The total score for the scale, which are reversed scored, was calculated by using the sum of all items divided by the number of items answered. Lower scores on the questionnaire suggests more problems related to HRQOL. The Cronbach’s alpha score (.95) shows good reliability and intercorrelations with PedsQL Multidimensional Fatigue Scales and PedsQL Generic Core Scales reported medium to large construct validity with scores between .30 and .50 (Panepinto et al., 2013).