Appendix 2: Example codes from UTx recipient interviews
Life experience with absolute uterine factor infertility
Events surrounding diagnosis Effects on life and life stages Effect of AUFI on identity Cause of AUFI Effect on others Reproductive choice for AUFI Information availability at diagnosis Sharing of diagnosis Treatment of diagnosis by physicians Emotional and psychiatric effects of AUI
Experience with uterus transplant
Motivations for transplant Conceptualization of risks Uterus transplant trial involvement process Reactions of others to UTx Informed consent and information needs Effect of UTx on identity Advice for future patients and providers Value of the experience Consideration of alternatives Challenges and setbacks Trust in team Expectations versus reality Information about UTX trials Conceptualization and understanding of clinical trial Comparison to other infertility patients Conceptualization of the transplanted uterus Sharing of trial participation Conceptualization of hysterectomy Conceptualization of relationships with other trial participants Luck and Success Personal value of merely having an option for UTx Conceptualization of Options After Graft Failure or Graft Removal
Conceptualization of the uterus transplant enterprise
Measurements of success Reproductive choice Financial considerations in clinical utx The importance of stories and sharing Predictions about the future of UTx UTX inclusivity Comparing UTx to other medical procedures and conditions Conceptualization of failures The general value of having UTX as an option
Living versus deceased donor approaches
Donor preference Experience with donor Knowledge gap Living donor motivation