Data Collection
Data collection included individual semi-structured interviews,
gathering demographic data and patient medical record review. Interview
guides were informed iteratively by the research team after a review of
relevant literature. Using concepts of Kirkpatrick’s14model of evaluation as a conceptual framework (with a focus on level 1:
reactions of learners), a semi-structured interview guide was developed.
The 31 question, semi-structured guide explored FC experience in all
phases and domains of the LTV discharge pathway and perspectives on
where they identified opportunities for improvement (see Appendix 3).
Pilot testing of the interview guide was completed with two FCs. The
interviews were conducted via telephone by an experienced qualitative
researcher. Interviews lasted between 45-60 minutes and occurred at a
time that was convenient for the family.
Demographic data was collected during the interview. Data about the
child and the medical context of LTV support was retrospectively
collected via the hospital’s electronic medical database.