Building capacity for self-care
FCs provided valuable insights into effective strategies that supported their capacity in preparing to care for their child at home. Comprehensive training was instrumental to their perceived readiness to care for their child upon discharge home. The identified key components included: 1) training by consistent content experts (nurses and respiratory therapists), 2) experiential or “hands-on” learning approach, 3) parent led pace, 4) knowledge demonstration and 5) adaptive and flexible sessions. In the acute care setting, there was a lack of opportunity for “hands-on” teaching. However, they also self-identified that immediately after tracheostomy insertion, their emotional state hindered readiness to learn while in acute care (see Appendix 6).