FC Experience Themes
Six themes emerged from this data that described FC experiences within the LTV discharge pathway (Figure 1). Each theme was associated with a pathway phase from time of choosing to proceed with invasive ventilation up to the point of caring independently for their child at home. These themes were: 1) making an informed decision, 2) transitioning to rehabilitation, 3) building capacity for self-care, 4) coordinating case management, 5) readying for discharge home and, 6) experiencing home care.