Study Design
We conducted a qualitative thematic-analysis study comprised of semi-structured interviews with FCs of children requiring LTV support at home. Data was collected between April 2019 and January 2020. Institutional ethics review board approval was received from The Hospital for Sick Children (REB #1000061042) and Holland Bloorview Kids Rehabilitation Hospital (REB #18-831). Parents were eligible for study inclusion if they: (1) had a child who was initiated on the LTV discharge pathway between December 2016 and September 2018 and (2) could read and write English. We used purposeful sampling to ensure we captured perspectives of FCs who provide care at home for children with a range of ages and medical conditions that represent varied experiences across the pathway.