Building capacity for self-care
FCs provided valuable insights into effective strategies that supported
their capacity in preparing to care for their child at home.
Comprehensive training was instrumental to their perceived readiness to
care for their child upon discharge home. The identified key components
included: 1) training by consistent content experts (nurses and
respiratory therapists), 2) experiential or “hands-on” learning
approach, 3) parent led pace, 4) knowledge demonstration and 5) adaptive
and flexible sessions. In the acute care setting, there was a lack of
opportunity for “hands-on” teaching. However, they also
self-identified that immediately after tracheostomy insertion, their
emotional state hindered readiness to learn while in acute care (see
Appendix 6).