Data Collection
Data collection included individual semi-structured interviews, gathering demographic data and patient medical record review. Interview guides were informed iteratively by the research team after a review of relevant literature. Using concepts of Kirkpatrick’s14model of evaluation as a conceptual framework (with a focus on level 1: reactions of learners), a semi-structured interview guide was developed. The 31 question, semi-structured guide explored FC experience in all phases and domains of the LTV discharge pathway and perspectives on where they identified opportunities for improvement (see Appendix 3). Pilot testing of the interview guide was completed with two FCs. The interviews were conducted via telephone by an experienced qualitative researcher. Interviews lasted between 45-60 minutes and occurred at a time that was convenient for the family.
Demographic data was collected during the interview. Data about the child and the medical context of LTV support was retrospectively collected via the hospital’s electronic medical database.