Pediatric CF Parent/Guardian Survey:
The survey was sent to parents/guardians of patients seen in the pediatric CF program with instruction that the survey was to be filled out by a guardian, even if their child with CF was older than 18 years. In the case of multiple children with CF, each parent/guardian was asked to fill out the survey with their oldest child with CF in mind. The ACE questionnaire displayed was from the Center for Youth Wellness (CYW) (Supplemental Table 2).18 Preferences about future participation in ACE screening and research were asked after both CYW Section 1 and 2.