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Psychological status of mothers of children with cystic fibrosis and primary ciliary dyskinesia
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  • Tugba Ramasli Gursoy,
  • Tugba Sismanlar Eyuboglu,
  • Ayse Aslan,
  • Nagehan Emiralioğlu,
  • Sevgi Pekcan,
  • Eda Buyukkaya,
  • Melih Hangul,
  • MEHMET KOSE,
  • Sebnem Soysal,
  • Işıl Budakoğlu
Tugba Ramasli Gursoy
Gazi Universitesi Tip Fakultesi
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Tugba Sismanlar Eyuboglu
Gazi University Faculty of Medicine
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Ayse Aslan
Gazi Universitesi Tip Fakultesi
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Nagehan Emiralioğlu
Hacettepe University Faculty of Medicine
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Sevgi Pekcan
Necmettin Erbakan University Meram Medical Faculty Hospital
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Eda Buyukkaya
Necmettin Erbakan University Meram Faculty of Medicine
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Melih Hangul
Erciyes Üniversitesi Tıp Fakültesi
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MEHMET KOSE
Erciyes Universitesi Tip Fakultesi
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Sebnem Soysal
Gazi Universitesi Tip Fakultesi
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Işıl Budakoğlu
Gazi Universitesi Tip Fakultesi
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Abstract

Objectives: We aimed to investigate depression, burnout, attitude, and burden of caregivers of children with cystic fibrosis (CF), and especially caregivers of children with primary ciliary dyskinesia (PCD) due to limited number of studies on this topic, and to compare them according to their children’s clinical status. Methods: Clinical features and demographic data of children and their families were asked to caregivers in four pediatric pulmonology centers. Beck Depression Inventory (BDI), Maslach Burnout Inventory (MBI), Zarit Caregiver Burden Scale (ZCBS), and Parental Attitude Research Instrument (PARI) were administered to caregivers in both groups. Results were compared between the two groups. Results: In total, 131 children with CF and 39 with PCD and their caregivers were involved in study. All primary caregivers were mothers in both groups. Depression, burnout, and burden scores of mothers of children with CF were significantly higher than mothers of children with PCD (p=0.017, p=0.024, p=0.038, respectively). Burnout was higher in both CF and PCD groups with low family income (p=0.022, p=0.034). Number of hospital visits in the previous six months was correlated with burnout in both CF and PCD groups (r=0.207, p=0.034; r=0.352, p=0.044). Conclusions: Although mothers of children with CF have higher depression, burnout, burden, and negative attitudes towards children than mothers of children with PCD, it is disregarded in mothers of children with PCD. Psychological problems of mothers of children with CF and PCD may increase with frequent hospital visits, hospitalizations, low family income, number of children, and chronic disease in another child.
27 Nov 2021Submitted to Pediatric Pulmonology
29 Nov 2021Submission Checks Completed
29 Nov 2021Assigned to Editor
21 Dec 2021Reviewer(s) Assigned
08 Mar 2022Review(s) Completed, Editorial Evaluation Pending
11 Mar 2022Editorial Decision: Revise Major
06 Apr 20221st Revision Received
07 Apr 2022Submission Checks Completed
07 Apr 2022Assigned to Editor
07 Apr 2022Reviewer(s) Assigned
26 Apr 2022Review(s) Completed, Editorial Evaluation Pending
14 May 2022Editorial Decision: Revise Minor
14 May 20222nd Revision Received
16 May 2022Submission Checks Completed
16 May 2022Assigned to Editor
16 May 2022Reviewer(s) Assigned
11 Jun 2022Review(s) Completed, Editorial Evaluation Pending
14 Jun 2022Editorial Decision: Accept