METHODS
This retrospective chart review included children born in Uppsala County from 2010 to 2016 who had received a CP diagnosis by December 2018. The children were identified through the local CP register (n=38), which is part of the Swedish National Cerebral Palsy Surveillance Program and Registry (CPUP),16 and through the electronic medical chart system (n=19). Children who were born outside Uppsala County or had moved into the county after 1 year of age were excluded from the study (n=18), leaving 39 eligible children.
Uppsala County have approximately 295,000 inhabitants living in either urban Uppsala or its surrounding rural areas. During the study period, 28,665 children were born in the county (Statistics Sweden), distributed as following: 668 born before gestational week 31 (2.3%), 1447 between gestational weeks 32-36 (5.1%) and 26,550 born at term (92.6%). These children attended well-child visits at any of the 44 child health centers in the county. Children enrolled in the neonatal follow-up program (gestational age <32 weeks) attended visits at Uppsala University Children’s Hospital, where the physiotherapist routinely assessed the infants’ motor performance using Structured Observation of Motor Performance in Infants (SOMP-I) at 2, 4 and 10 months corrected age.17 When a diagnosis of CP was made by the neuropediatrician, the child was referred to habilitation services. The final diagnosis of CP is routinely made around four years of age.16