Taking care of the Golem. Reflection on the role of technologies and information sharing in complex care contexts
In this paper, we observe arising issues related to information sharing, comparing the field studies in pediatric palliative care and in nursing homes. In both studies, we explored issues related to continuity of care by focusing on information continuity. In particular, we explored the contrasting opinions of caregivers on how and what information should be shared between relatives and professionals. We used as a theoretical insight the concept of Golem, which provided insightful reflections on the role of technology in such contexts.