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Different information needs -- the major reasons for calling the helpline when invited to colorectal cancer screening
  • Kaisa Fritzell,
  • Anders Kottorp,
  • Anna Jervaeus
Kaisa Fritzell
Karolinska Institutet

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Anders Kottorp
Malmö Universitet
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Anna Jervaeus
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Abstract

Background and aims Colorectal cancer screening programmes, targeting one of the most common cancers worldwide are widely spread, however, well known for facing challenges due to low participation. Using decision aids (DAs), often accessible online including disease related information, information about the screening procedure, benefit and harms with screening and value clarification exercises, in connection to a treatment- or screening decision helps people to make informed decision about screening. This study pertains the design of a DA, including views and concerns lay people have when invited to CRC screening, to shed light on their information- and support needs. Therefore, the aim of study was to explore the calling patterns to the Screening of Swedish Colons (SCREESCO) study’s helpline. Method A descriptive study using a cross sectional design with data from documented telephone calls to a CRC screening helpline. Results More than 2000 calls (women 58.5%; colonoscopy 59%) were analyzed. Reasons for calling were: unsubscribing from screening (25%), confirmation of participation (24%), logistical concerns about the screening procedure (20%), counseling (19%), and FIT screening difficulties or in need of a new FIT test (10%). Co-morbidity was the most frequent reason for unsubscribing (14%) and most of the counselling calls included questions about the FIT test or the colonoscopy (56%). Conclusions Since the helpline mainly was used for informational purposes – we conclude that the information provided was unclear or should be presented in alternative ways. Still, Interaction possibilities with health care professionals are, important in case of ambiguity anxiety or by individual preference. The planned decision aid (DA) should provide knowledge generated information with respect to the individual’s needs, health- and digital literacy with a possibility to interact with health care professionals.