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Caregivers’ feeding experiences of children with cerebral palsy: a systematic review of qualitative evidence
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  • Christine Taylor,
  • Nadia Badawi,
  • Iona Novak,
  • Jann Foster
Christine Taylor
Western Sydney University School of Nursing and Midwifery

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Nadia Badawi
The Children's Hospital at Westmead
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Iona Novak
Cerebral Palsy Alliance Research Institute
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Jann Foster
Western Sydney University School of Nursing and Midwifery
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Abstract

Feeding difficulties in children with cerebral palsy are common, yet there is no comprehensive view of the caregivers’ experiences. This review utilized the JBI meta-aggregation approach to synthesize qualitative literature regarding the feeding experiences of caregivers of children with cerebral palsy. Using a comprehensive search strategy databases and grey literature were searched that identified 619 studies for screening, with 11 studies included in the review: 239 findings were extracted for analysis resulting in 22 categories and six synthesized findings. The synthesized findings included the impact of feeding on caregivers and the family, feeding and feeding difficulties, caregivers’ perceptions of support, feeding as an essential part of being a mother and family, feeding decisions, and impact of a gastrostomy tube. The review captured studies that varied in country (income type) and method of feeding. Credibility and dependability for all synthesized findings were at the moderate level.