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Transforming the Nutrition Care Model for Infants with Cystic Fibrosis: a qualitative study of clinicians’ perspectives
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  • Thida Ong,
  • Sarah Bell,
  • Maria Britto,
  • Breck Gamel,
  • Sharon McNamara,
  • Bonnie Ramsey,
  • Krysta S. Barton
Thida Ong
University of Washington Department of Pediatrics

Corresponding Author:[email protected]

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Sarah Bell
Seattle Children's Hospital
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Maria Britto
Cincinnati Children's Hospital Medical Center James M Anderson Center for Health Systems Excellence
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Breck Gamel
Children's Health Children's Medical Center Dallas
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Sharon McNamara
Seattle Children's Hospital
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Bonnie Ramsey
University of Washington Department of Pediatrics
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Krysta S. Barton
Seattle Children's Research Institute
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Clinician perspectives may inform health service strategies to meet optimal nutrition needs for infants with cystic fibrosis (CF). We conducted a qualitative study with CF-specialized dietitians (RDs) and physicians between July to December 2020 to characterize the current state of infant nutrition care delivery and organize input into a conceptual model to inform CF care program strategies. Among 42 participants, 36 completed survey responses and 6 completed interviews; 93% were RDs. Three global themes emerged in the current care model: nutrition management, family-centered connections, and collaborative care delivery. Within nutrition management clinicians emphasized providing education, setting goals, and maintaining adequate follow-up with families. Under family-centered connections clinicians expressed the need to foster relationships with families and link families to resources for assistance to social stressors such as food insecurity. Collaborative care delivery for clinicians interviewed was defined by sharing expertise from across the interdisciplinary team. Based on the timing of this study, clinicians reported compelling examples for various modes of telehealth and home weight monitoring to facilitate and support these domains of nutrition care, including potential advantages for education, supporting family needs, and communication. We integrate these themes to propose a conceptual model for integration of in-person and telehealth activities to enhance quality infant CF nutrition care delivery. Future implementation can refine this model through testing of practical telehealth interventions to optimize nutrition outcomes for infants with CF.
06 Sep 2022Submitted to Pediatric Pulmonology
06 Sep 2022Submission Checks Completed
06 Sep 2022Assigned to Editor
12 Sep 2022Reviewer(s) Assigned
02 Oct 2022Review(s) Completed, Editorial Evaluation Pending
18 Oct 2022Editorial Decision: Revise Minor
21 Dec 20221st Revision Received
21 Dec 2022Submission Checks Completed
21 Dec 2022Assigned to Editor
21 Dec 2022Review(s) Completed, Editorial Evaluation Pending
21 Dec 2022Reviewer(s) Assigned
19 Jan 2023Editorial Decision: Accept