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Parents experiences of handling oral anticancer drugs at home: “It all falls on me …”
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  • Ranaa Akkawi El Edelbi,
  • Staffan Eksborg,
  • Ulrika Kreicbergs,
  • Malin Lövgren,
  • Klara Wallen,
  • Jennie Ekman,
  • Synnöve Lindemalm
Ranaa Akkawi El Edelbi
Women and Children´s Health Astrid Lindgrens Childrens Hospital
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Staffan Eksborg
Karolinska Institute Department of Women's and Children's Health
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Ulrika Kreicbergs
Health Care Sciences/Palliative Research Centre
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Malin Lövgren
Ersta Sköndal Bräcke University College
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Klara Wallen
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Jennie Ekman
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Synnöve Lindemalm
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Abstract

Aim: The aim of this study was to describe the experiences of parents handling oral anticancer drugs in a home setting. Methods: Parents of children with cancer were recruited from a pediatric oncology ward in Sweden to participate in an interview. The interviews were transcribed verbatim and subjected to qualitative content analysis. Results: We found the following categories and subcategories: parents’ views on the provided information - lack of, too little or contradictory information, and parents’ preferences for information delivery; safety over time; correct drug dose; and drug administration. As time passed, most parents adapted to their child’s illness, felt safer, and found it easier to take in and process any given information. Parents preferred information in different formats (written, movie clips and orally) and in their mother tongue. Many parents were aware of the importance of giving an accurate dose to their child and described the process of drug administration as overwhelming. Conclusions: Parents need to be provided with accurate, timely, nonconflicting and repeated information – in different forms and in their mother tongue – on how to handle oral anticancer drugs at home.
03 Feb 2022Submitted to Journal of Evaluation in Clinical Practice
07 Feb 2022Submission Checks Completed
07 Feb 2022Assigned to Editor
25 Feb 2022Reviewer(s) Assigned
27 May 2022Review(s) Completed, Editorial Evaluation Pending
07 Jun 2022Editorial Decision: Revise Minor
10 Jun 20221st Revision Received
16 Jun 2022Submission Checks Completed
16 Jun 2022Assigned to Editor
29 Jun 2022Review(s) Completed, Editorial Evaluation Pending
01 Jul 2022Editorial Decision: Accept